PLEASE READ THESE TERMS AND CONDITIONS CAREFULLY BEFORE USING THIS SITE
These terms set forth a legally binding agreement between you and Recordati Rare Diseases (“we”, “our”) and aim to offer to our website visitors (“you”, “your”) information about the rules that govern your use of this website www.mysylvant.com (our Site).
By accessing or otherwise using the website www.mysylvant.com you confirm that you have read and understood that this website is subject to these terms that you accept and agree to comply with them, all applicable laws and regulations, and agree that you are responsible for compliance with any applicable local laws. If you do not agree to these terms, you must not use our Site.
We recommend that you print a copy of these terms for future reference.
This website is a disease awareness website operated by Recordati Rare Diseases. Its content is addressed only to adult iMCD patients who are HHV-8 and HIV negative, already in treatment with SYLVANT (siltuximab), a FDA/EMA approved therapy for idiopathic Multicentric Castleman Disease (iMCD), from the United Kingdom and Europe. We are registered in England and Wales under company number 9329429 and have our registered office at Breakspear Park, Breakspear Way, Ground Floor, Hemel Hempstead, Hertfordshire, HP2 4TZ. Our VAT number is 203 0183 71. We are a limited company. To contact us, please email corporate@recordati.com.
These terms of use refer to the following additional terms, which also apply to your use of our Site:
We are the owner or the licensee of all intellectual property rights in the Site, and in the material published on it. Those works are protected by copyright laws and treaties around the world. All such rights are reserved.
You may print off one copy, and may download extracts, of any page(s) from www.mysylvant.com for your personal use and you may draw the attention of others within your organisation to content posted on the www.mysylvant.com.
You must not modify the paper or digital copies of any materials you have printed off or downloaded in any way, and you must not use any illustrations, photographs, video or audio sequences or any graphics separately from any accompanying text.
Our status (and that of any identified contributors) as the authors of content on our Site must always be acknowledged.
You must not use any part of the content on our Site for commercial purposes without obtaining a licence to do so from us or our licensors.
If you print off, copy or download any part of the Site in breach of these terms of use, your right to use the Site will cease immediately and you must, at our option, return or destroy any copies of the materials you have made.
Unless otherwise indicated, all our product names are registered trademarks. All our logos and trademarks may not be used or reproduced without our prior written consent, unless they are part of material you are using as permitted detailed above.
To access our Site and consequently certain features of it, like the videos section or downloading material, you will be required to declare that you are an adult iMCD patient who are HHV-8 and HIV negative patient already in treatment with SYLVANT (siltuximab), a FDA/EMA approved therapy for idiopathic Multicentric Castleman Disease (iMCD). You agree to provide true, accurate, current and complete information about yourself as prompted by accessing the website.
This service is not addressed to the general public.
If we have reasonable grounds to suspect that such information is untrue, inaccurate, or incomplete, we reserve the right to refuse any and all current or future use of our Site.
All material on the website, including but not limited to text, images, illustrations, code, scripts and audio clips/live audio is protected by copyrights which are owned and controlled by Recordati Rare Diseases. Material from this section may be downloaded for personal use but not be copied, reproduced, republished, uploaded, posted, transmitted, or distributed in any way, unless we give you the written permission to do so.
We provide the podcast/video materials (patients’ journey) for disease awareness purposes only. Podcasts should not be considered as a piece of professional advice. Reference to any specific product or entity does not constitute an endorsement, approval or recommendation by Recordati Rare Diseases. The views and opinions expressed by guests are their own and their appearance on the program. They do not represent or reflect the official policy or position of Recordati Rare Diseases and does not imply even an endorsement of them. We do not make any commitments about the content of podcasts/videos, or their reliability, availability, ability to meet your needs. The content of the videos and material in pdf that can be downloaded is up to date till the day of downloading and it might be amended or updated at a later stage without any liability of Recordati Rare Diseases. If you have any questions about this disclaimer, please contact us at: corporate@recordati.com.
We may amend these terms from time to time. Every time you wish to use our Site, please check these terms to ensure you understand the terms that apply at that time.
We may update and change our Site from time to time.
We do not guarantee that our Site, or any content on it, will always be available or be uninterrupted. We may suspend or withdraw or restrict the availability of all or any part of our Site for business and operational reasons. We will try to give you reasonable notice of any suspension or withdrawal.
You are also responsible for ensuring that all persons who access our Site through your internet connection are aware of these terms of use and other applicable terms and conditions, and that they comply with them.
The content on our Site is provided for general information only. It is not intended to amount to advice on which you should rely. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of the content on our Site.
Any medical information on this Site is not intended as a substitute for informed medical advice and we cannot answer unsolicited emails relating to personal healthcare issues. Information on the products mentioned on this Site may vary by country. Patients should check with local medical resources and regulatory authorities for information appropriate to their country. You must consult a suitably qualified healthcare professional on any specific problem or matter which is covered by any information on this Site before taking any action.
If you choose to access the Site from location outside the intended audience, you do so on your own initiative and are responsible for compliance with local laws, if and to the extent local laws are applicable.
Although we make reasonable efforts to update the information on our Site, we make no representations, warranties or guarantees, whether express or implied, that the content on our Site is accurate, complete or up to date.
Our Site contains links to other sites and resources provided by third parties on the internet, these links are provided for your information only. Such links should not be interpreted as approval by us of those linked websites or information you may obtain from them. We have no control over the contents of those sites or resources and you acknowledge that we are not responsible for the accuracy, copyright compliance, legality, decency, or any other aspect of the content of such websites or resources.
We will take all reasonable steps to ensure that any software used in connection with the Site is not infected by viruses, however, we do not guarantee that our Site will be secure or free from bugs or viruses.
You are responsible for configuring your information technology, computer programmes and platform to access our Site. You should use your own virus protection software.
You must not misuse our Site by knowingly introducing viruses, trojans, worms, logic bombs or other material that is malicious or technologically harmful. You must not attempt to gain unauthorised access to our Site, the server on which our Site is stored or any server, computer or database connected to our Site. You must not attack our Site via a denial-of-service attack or a distributed denial-of service attack. By breaching this provision, you would commit a criminal offence under the Computer Misuse Act 1990. We will report any such breach to the relevant law enforcement authorities and we will co-operate with those authorities by disclosing your identity to them. In the event of such a breach, your right to use our Site will cease immediately.
You may link to our home page, provided you do so in a way that is fair and legal and does not damage our reputation or take advantage of it. You must not establish a link in such a way as to suggest any form of association, approval or endorsement on our part where none exists. You must not establish a link to our Site in any website that is not owned by you. Our Site must not be framed on any other site, nor may you create a link to any part of our Site other than the home page. We reserve the right to withdraw linking permission without notice. If you wish to link to or make any use of content on our Site other than that set out above, please contact corporate@recordati.com.
Our failure to enforce any right or provision of these terms of use will not be considered a waiver of those rights. If any provision of these terms is held to be invalid or unenforceable by a court, the remaining provisions of these Terms will remain in effect.
Recordati Rare Diseases respects the privacy of its website visitors. Please refer to Site’s Privacy Policy for an explanation of your rights and responsibilities with respect to the information that is disclosed on the Site.
These terms of use, their subject matter and their formation (and any non-contractual disputes or claims) are governed by English law. We both agree to the exclusive jurisdiction of the courts of England and Wales.
Updated 10 December 2024
